Showing the first 37 results out of 37 in the database. If you need more, you can download the CSV file from here.
For the past 14 years, It was presumed that I had IGA Nephropathy. Just recently, I was diagno...
Hi! My name is Mel and I am a content creator with a rare genetic condition called Thiamine Tra...
In this channel I upload videos and information about my daughter Victoria. She has a very rare...
Khalifa Genetics is a small group of passionate breeders who all share a common vision: Creatin...
Welcome, friends! Let's create a simple, joy-filled home. On this channel you will find homema...
Here at Royal Canadian Reptiles (RCR), we have been striving to produce some of the most rare a...
Rare diseases don't cure themselves. We are the organization working to cure Rett Syndrome. As ...
The official YouTube channel for Rare Genetics, Inc! Our goal as a company is to research and o...
Our mission is as simple as it is compelling: to help preserve vanishing chicken breeds from a...
Hi and welcome to our channel Beetin' Genes! We are two sisters/best friends living in Albuquer...
I am a Georgia based Music Producer, Actor, Voiceover Talent, and Content Creator. I have Oste...
WELCOME 🧡 MY NAMES EMILY & IM A CASH STUFFING, HOME EDUCATING, PREPPING SINGLE MUM TO 3 GORGE...
Hello Guys my name is Dallas . I am 9 years old with a rare genetic disorder called CDKL5. Com...
The mission of Dravet Syndrome Foundation www.DravetFoundation.org (DSF) is to aggressively ra...
PSC Support is the leading organisation for anyone affected by primary sclerosing cholangitis (...
Hunter syndrome is a rare genetic disease that primarily affects boys. Also known as mucopolysa...
The Wilson Disease Association funds research and facilitates and promotes the identification, ...
Genetic Alliance UK is an alliance of over 200 charities and support groups working together to...
I have a rare genetic condition called Homocystinuria (HCU). Most of the videos will explain so...
Weaknesses?! My daughter Zoey has not one, but two rare genetic syndromes (MBD5-associated neur...
Welcome to the channel that has 0 Excuses, My name is Brandon. Physically disabled with a rare ...
Hey gorgeous people, My name is Luka-Angel. 10 years ago I was diagnosed with a rare genetic he...
Like many stories of hope, ours begins with struggle. In 2013, Grace Wilsey was diagnosed with ...
Keep Me Breathing is a UK charity working to transform the lives of children born with a rare g...
""Welcome to our YouTube channel dedicated to the Mission Program on Pediatric Rare
Henrique Vianna dos Santos was diagnosed with a very rare genetic disease named MDC1A or LAMA 2...
This channel documents my 4 year journey to try to get the NHS to prescribe me Rapamycin for my...
Learn the signs, symptoms, common misdiagnoses, and more related to the rare genetic disorder A...
Get answers for your symptoms. 30 million Americans have rare genetic conditions. Patients ofte...
A Rare Genetic Disease - SMC1A Related DEE, or SMC1A Epilepsy. Females have X-linked Loss of Fu...
I was diagnosed with a rare genetic kidney disease in 2016, I reached kidney failure in March o...
In 1991 after being in many other bands through the eighties. Five members of RGF decided to st...
Jean has Coffin Siris Syndrome - a very rare genetic disorder. I hope these videos will be of u...
Our children have been diagnosed with a rare genetic condition called Lebers Congenital
Showing the first 37 results out of 37 in the database. If you need more, you can download the CSV file from this page.